Friday, May 4, 2018

Road Trippin'

Welcome to a Secret Subject Swap. This week 10 brave bloggers picked a secret subject for someone else and were assigned a secret subject to interpret in their own style. Today we are all simultaneously divulging our topics and submitting our posts.

My “Secret Subject” is:

Road trip: You’re given a rental car and a credit card that is good for accommodation, food, gas and entrance fees for 10 days. The offer includes as few or as many passengers as you may fit into your vehicle. Where are you going and with whom?

It was submitted by:

Even just a couple years ago, I might have been the perfect person to answer this prompt but as it's just no longer in the cards. But here we are anyway. I gave it my best shot. 


Road trips are not exactly possible for me anymore. I have me/cfs, and that means my ability to do things I once enjoyed is limited. And it also means my energy levels are pretty fucked. A 45 minute trip to the grocery store wipes me out (not including the drive time). Traveling isn't really in my goals least not a 10 day trip. I do have a small trip tentatively planned to visit someone I write later this year, but honestly I can count the times I have been even an hour from home in the last 2 years of being sick on one hand.

That's not to say I couldn't dream up some amazing places to go if I wanted, but part of me being able to deal with this illness is being realistic. I think some people get by living in their heads and pretending things are different, and I get that. But for me that kind of daydreaming is just a reminder of the things I'll never get to do. I don't want to pretend I'm ok and live in a fantasyland in my head, and I don't really want to try and push through for the sake of doing something I really want to do, that I've talked myself into despite knowing I shouldn't, because the blowback of being bedridden for days and not being able to speak right or focus or take care of my responsibilities as a parent, pet parent, and homeschooler just isn't worth it. I have to accept life for what it is now, and the more I do that rather than pretend things are different, the better I deal with it all both physically and mentally.

I'm not selfish though.

My son's father and his new family have been on several trips to Disney World, and the boy always has fun, but more than anything he really wants to see the Harry Potter part of the Universal Orlando theme park. We read those books together a couple years ago, bonded over them, and really fell in love with the wizarding world. We cried and learned lessons about life and love and figuring out who we are. It was an amazing journey we shared, and if I had not gotten sick not long after we read them I would have taken him by now as much for myself as him.

Universal Orlando is roughly a 6 hour drive for us. I can't drive it safely, but he and I wouldn't have to go it alone and could take as many rest stops as I needed. And when, inevitably, my energy gave out, I could spend my time in the hotel away from all the chores and responsibilities that usually keep me up and moving long after my energy levels crash. It certainly wouldn't take 10 days to drive to and see the park, but we have animals to care for anyway--special needs cats and dogs that no one can medicate but me. Believe me when I say I've tried to hand off that chore when I'm feeling my worst. It always ends up being on my shoulders though.

So there I would be along for the ride and missing some of the best parts of the park hiding away from the lights and sounds that always end in pain and resting up for the drive home. Bet your ass I'd also be feasting on candy from Honeydukes though, and elated over the few trinkets from other parts of the Hogsmeade shops I'd manage to snag.

I may not have the life I once did, and I may have to forfeit many of the big dreams and goals, but I'm okay with a life lived in small moments. I kind of have to be.

Also, if it weren't for the kid being a Potterhead, I'd opt to stay home, sell the trip, and take a mental journey with some shroom chocolate.


Here are links to all the sites now featuring Secret Subject Swap posts. Sit back, grab a cup, and check them all out. See you there:

Baking In A Tornado


  1. Although I understand the need to accept reality and live the best life you can, I wish you could take that trip without the repercussions.

  2. I'm so sorry, Jenniy, I knew you had health issues, but I had no idea you were in such bad shape.
    Here's to enjoy the small moments with your Potterhead and animals 💖

  3. I'd love a trip to Harry Potter world. My kids and I are huge fans!