tag:blogger.com,1999:blog-1246675223518182656.post304956434235678856..comments2023-09-15T09:49:56.608-04:00Comments on Climaxed: SpooniesJenniy Frenchhttp://www.blogger.com/profile/04902332589392779881noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-1246675223518182656.post-86868030218056049272017-08-22T20:03:23.639-04:002017-08-22T20:03:23.639-04:00It's SO hard going from living a full life to ...It's SO hard going from living a full life to whatever this is... I hate feeling like I can't and it is literally driving me crazy. My anxiety is through the roof trying to figure out how to deal with all this, but I'm learning. It's a process. I used to be the breadwinner in all my relationships and I've always been able to take care of myself. If I set my mind on doing something, I did it even if I had to teach myself how first. Depending on other people to help me out because I can't work full time anymore and struggle with the day to day is a pain in the fucking assJenniy Frenchhttps://www.blogger.com/profile/04902332589392779881noreply@blogger.comtag:blogger.com,1999:blog-1246675223518182656.post-55621981476419758052017-08-22T20:00:46.580-04:002017-08-22T20:00:46.580-04:00I'm thinking about getting the spoon image I i...I'm thinking about getting the spoon image I included that says "Not Today." Sometimes I need the reminder and sometimes people I love do. It's so hard to get other people to understand what you're going through! I think that's one of the toughest parts. Jenniy Frenchhttps://www.blogger.com/profile/04902332589392779881noreply@blogger.comtag:blogger.com,1999:blog-1246675223518182656.post-22878323887865505672017-08-22T19:55:08.522-04:002017-08-22T19:55:08.522-04:00Not a lot actually. It's not really understood...Not a lot actually. It's not really understood and has only recently been taking seriously as a medical diagnosis. It's more common in women but at least here women are often underdiagnosed because doctors simply dismiss their issues! It's sad. So I take supplements, do some strengthening exercises because aerobics is out, and just sort of take it day to day. With all the animals I have housework is a must and it's easier to maintain cleanliness than it is to do a major clean once a week or whatever, so I'm sort of getting a system down for that. Jenniy Frenchhttps://www.blogger.com/profile/04902332589392779881noreply@blogger.comtag:blogger.com,1999:blog-1246675223518182656.post-60052439761617226942017-08-13T22:04:25.858-04:002017-08-13T22:04:25.858-04:00I have those spoons! I have something called Felty...I have those spoons! I have something called Felty's Syndrome which is a rare form of RA. The fever and fatigue are the only f-ing I'm getting because there just isn't a spoon big enough for that. I'm just trying to be funny, but it is devastating. I was diagnosed in my 30's and I had a life I LOVED. I got paid EXCELLENT to drive around all day and listen to my stereo and deliver the mail. The next thing I know I'm bedridden for a year because of not having insurance to the point where I almost died. I ended up in an ER with blood transfusions being given to me over and over because I had bled out internally somehow. Anyway, I now don't drive, I live like I'm an freakin 80 year old because I have to take care of mom and some days I just want to lay on the bathroom floor all day. You just gotta keep searching for something that makes you happy even if you have to do it from the couch. Focus on that little bit of happy. I won't say I'll pray for you because I don't believe in God, but I will keep you in my thoughts and if I pick up an extra spoon I send it your way! Oh I wanted to tell you from your comment on mine last week. My daughter has that PCOS. That is a BITCH plus this on top. I'm sure it's all connected some how probably all leading back to a lb of Oscar Meyer Bologna. LolRenahttps://www.blogger.com/profile/12296781992150172086noreply@blogger.comtag:blogger.com,1999:blog-1246675223518182656.post-38351127830659535922017-08-11T13:16:45.385-04:002017-08-11T13:16:45.385-04:00I totally get the chronic illness. I have Anklosi...I totally get the chronic illness. I have Anklosing Spondylisis - which is a type of autoimmune disease that attacks the large joints and the spine. It also impacts my vision on some days - and causes chronic fatigue and severe anxiety. There are some days, I just don't know how I will make it through. I'm glad you have a friend that understands you. That spoon necklace sounds like a lovely reminder gift.Anonymoushttps://www.blogger.com/profile/06092515351560475922noreply@blogger.comtag:blogger.com,1999:blog-1246675223518182656.post-11973049825869269282017-08-11T12:17:19.676-04:002017-08-11T12:17:19.676-04:00I'm sorry you have to fight your way through a...I'm sorry you have to fight your way through a day. It just seems so unfair.Karen @BakingInATornado.comhttp://bakinginatornado.comnoreply@blogger.comtag:blogger.com,1999:blog-1246675223518182656.post-39422752863502458632017-08-11T10:56:25.318-04:002017-08-11T10:56:25.318-04:00I didn't know you suffer from cfs, so sorry to...I didn't know you suffer from cfs, so sorry to hear! I know "normal tired" and "very tired", but at least I get to recharge.<br />What is there that can be done medically?<br />Here's to not giving in and to using your spoonfulls wisely. Certainly don't spend them on housework! Tamarahttps://www.blogger.com/profile/06945984135731336978noreply@blogger.com